Internet resources - bone sarcomas
This page is a resource for UK patients diagnosed with a bone sarcoma - sometimes referred to as primary bone cancers. This distinguishes them from secondary cancers in the bone. This page provides links to web pages around the world which can offer information and advice to patients. Please advise us if you find any of the links do not work.
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Cancer Help is run by Cancer Research UK - the leading charity. Excellent material including 'Questions for Your Doctors'. As well as the link use the site's search function as there are further references within the site. |
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| The UK's cancer information charity. This is the sarcoma booklet which is also available in print but the website is worth searching further. | |
| Bone Cancer Research Trust (BCRT) | BCRT is the UK's leading support and research funding charity for primary bone cancers. It was founded and is run by parents and patients, supported by leading doctors. |
| gaps:line | A family support line for parents and carers of children with cancer. See website for telephone contact details. |
| Royal Orthopaedic Hospital (Birmingham) | One of the two largest UK treatment centres for primary bone cancers. |
| Royal National Orthopaedic Hospital (Stanmore) | The other one. Both ROH and RNOH are centrally funded by the NHS to treat these cancers (along with four smaller treatment centres). |
Sarcoma PDQ ... |
PDQ is the US National Cancer Institute's (NCI's) comprehensive cancer information database. The patient files carry links to the professionals files. |
| ... for osteosarcoma | This link is to the patient file for ostesarcoma and MFH |
| ... for Ewings tumours | This link is to the patient file for Ewings family of tumours including PNET (primitive neuroectodermal tumour). |
| The excellent pages from one of the USA's leading cancer centres, Memorial Sloan Kettering in New York. These pages look at the whole spectrum of paediatric sarcoma including soft tissue tumours. | |
| Cancer Source is an information service of iKnowMed which provides tools to support oncologists. This link is to their sarcoma pages. | |
| US based patient group which also fund raises for research. | |
| Patient diary | An inspiring and unusually detailed patient diary. Lee Harcus was treated for osteosarcoma in 2002. |
| Last updated 11th June 2007 |