Questions - Asking about GIST

These are some of the questions you might wish to ask your consultant or nurse. The links at the bottom of the page are to downloadable files which you can edit and add to to suit your own needs.

Why has this happened to me?

What is GIST?

What causes sarcomas like GIST?

Could it have been caused by (radio mast/chemicals/sports injury)?

Have I brought this on myself – smoking, wrong eating etc?

Have I inherited it?

Could I have prevented it?

How long have I had it?

Why wasn’t it detected earlier?

What are my chances of making a full recovery?

Will my children get sarcoma or GIST too?

How many people get this disease?

What will happen to me  Telling others  Understanding the tests  Discussing treatment

Surgery  Understanding Glivec  Follow-up and Monitoring

Download files: Microsoft Word  Rich text format  Acrobat

If you need help with Adobe Acrobat format files please click here.